How do you help someone after a loss?
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Topic:Pregnancy
Thread closing on 10 February, 2024
ParentData
2 years ago
How do you help someone after a loss?
Before we begin, we want to let you know that today’s question and discussion are about late-term pregnancy loss, a delicate topic. If you could use extra support, please reach out to someone you trust. Postpartum Support International also has valuable resources for those experiencing loss and grief in pregnancy and postpartum.
When someone we know is going through a loss, we want to be there for them. We want to make them feel better, support them, and comfort them. But how do we do that when loss and grief can be such deeply personal experiences? What is the “right” thing to say or do?
If you’ve ever experienced a similar loss or supported someone through a situation like the one below, please kindly share your thoughts in the comments.
—Denisse, ParentData Community Manager
And now for today’s question.
My sister recently lost her baby boy at 38 weeks. We are all heartbroken and devastated, but also yearning for answers and connection. If you or a loved one went through a pregnancy loss, especially so late in pregnancy, what helped you grieve and process? How can I best support my sister and her husband during this time?
—Heartbroken Sister
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2 years, 2 months agoMidwestMamaBear
I’m so, so sorry for your family’s tremendous loss. My best friend’s sister went through a loss at 41 weeks. One of the things that she has been vocal about is asking people to not be afraid to say her son’s name, or ask about her son, or more generally, acknowledge his existence. Another concrete way that helped was for someone to organize a meal train; people can participate from far away, too, via gift cards for delivery services. Sending lots of love and strength as your family navigates this grief.
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2 years, 2 months ago
jhartYes! Say their name, especially in the months and years after the loss. There will be a lot of condolences and attention in the days following the loss, but it will slow down and be quiet in a month, two months, three months from now. Continue to check in. Put the loss date on your calendar and check in with them in the month of the loss, and the week of the loss and the day of the loss.
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2 years, 2 months agoameliao
I’m so sorry. In my experience, don’t ask for reasons or any questions that only help with your understanding. If they want to share why this happened or if they want to try again etc. they will tell you. If they don’t offer this, they don’t want to discuss it. By all means continue to ask how they are doing, want to get out of the house etc. but don’t be another thing they have to process right now. You are all grieving, but it’s absolutely not the same.
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2 years, 2 months agoSarahesea
I’m so sorry to hear about your sister’s, and your family’s, loss. I had a loss at 21 weeks and eventually found my way to Empty Arms. They’re based in Western Massachusetts (I’m not) but they have great resources on their website for friends and family, as well as for parents: http://www.emptyarmsbereavement.org/resources-for-family-friends
Sometimes there are no words to say, because nothing anyone says can make something better. Just being there, checking in, providing care without being asked, can be so meaningful. I think the previous comment about not being afraid to talk about the baby who was lost, is also important. Especially if there’s a future pregnancy, because that pregnancy will be informed by the one that was lost.
You and your sister and your family will have better days ahead. Your sister is also so fortunate to have you in her life. Sending lots of care your way.
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2 years, 2 months ago
MegI lost my son at 35 weeks. He was my first. It turned out. He had a cord accident, the cord ruptured. But we did not know that for a number of months. I then had two early miscarriages before finally having my living daughter. At the same time, my daughter was born, one of my best friends from high school Experienced a late term cord accident. She has a living son who would be the same age as my son. I now have a living daughter that would be the same age as her daughter. So I’ve been on both sides. I think the most helpful thing to understand is that there’s nothing you really can do that is going to fix it. It can’t be fixed. The children we lose, will always be our children and whether we have other living children or not, our family is never complete. Those first months are extremely painful. I would say from my experience the first 15 months were the hardest. Friends and family have shown up in many ways that have been helpful and not so helpful. Early on, you mostly need help with surviving. Food, check-in, making sure , we are showering and sleeping. A lot of people ask if there’s anything they can do and I never really knew how to answer that question. The things that helped the most were the things that just appeared. Also, one of my very good friends sent me a box with a number of small wrapped gifts , she told me to open one whenever I was having a particularly hard time for comfort. The gifts were things like a mug with a box of hot hot chocolate, a necklace, comfy pajama pants, etc. That helped a lot and I felt like she was with me and caring for me whenever I needed it without having to ask and without her having to ask. I did the same for my friend and she said it was the most helpful as well. Later on, just telling her you’re thinking of her son, and using her son‘s name. We just want the babies that we’ve lost to feel included and seen as part of our family, first and foremost, at least that’s my experience and my friends experience. The way we love them, and the way we grieve is keeping their memory alive And we don’t have a ton of stories of times we spent together or times we went to this place or that place. We just have those times we were pregnant with them. So we talk about those times and it’s helpful when others acknowledge them as real. Also, I’m sorry for any typos, I’m voice to texting this to try to get my thoughts out .
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2 years, 2 months ago
MegI should add, my son Spencer was born in June 2020 (that’s why we had no answers for a long time, they were slower during the peak pandemic months at rounding on the autopsy reports). My living daughter was born Sept 2022. I am so sorry for your sister. It’s so so hard. It never gets better but it does get easier.
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2 years, 2 months agoLucy
I will second “the things that helped most were the things that just appeared”. And yes, even what you might think is the simplest care package will be so meaningful!
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2 years, 2 months agozjfried@gmail.com
Thirding this. Groceries (heavy on prepared foods) were amazing. I did not have the ability to ask for this or know I really needed it but it was so helpful and a way to feel the love of others even if they couldn’t physically be with me.
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2 years, 2 months agoRyan
I’m so sorry for your sister’s loss, your family’s loss, and your loss. We lost our daughter, Madelyn, on her due date, the day after Christmas two years ago. Several months later I had sent out a newsletter to my subscribers (I’m an author) explaining what had happened,in that post I also talked about what had helped us in the early days. I’m pasting that below in the hopes that it may help a little bit (nothing really helps much unfortunately). The other thing I would add to that is to understand that this kind of grief will be years in the healing. Two years on, we were able to have a second daughter, but beyond her, joy remains elusive. Here’s what I wrote two years ago:
I know this has been a dark letter to read through. For those of you who have experienced similar loss, I am so sorry you’ve had to endure this pain and I’m sorry if reading this brought those memories back to the fore. Before I wrap up, I don’t want to leave things where they stand now: I want to try to shine some light on this dark nightmarescape. I want to share what helped us in those early days and helps us today. What made things, if not better, at least slightly less worse. What gave us the infinitesimal respites to survive. It may help you or a friend or family member, but I hope it helps someone.
What helped in those first few days…Knowing we weren’t alone. The hospital gave us 2 books that were lifelines. The first was specific to our situation, Surviving My First Year of Child Loss by Nathalie Himmelrich , with stories from many other parents who were in similar situations. The second is helpful for anyone experiencing the loss of a loved one, It’s OK that You’re Not OK by Megan Devine. Grief is such a taboo in our society that when the intensity of it hits us so closely that we’re run through from side to side, we aren’t prepared for it. We think we’re losing our minds, at least, I worried I was. This book helped me understand I wasn’t losing my mind and gave me real things I could do to alleviate suffering. Nothing alleviates pain and grief, but you can control when that turns into suffering, to a degree, and that’s where this book really shined.
Knowing we weren’t alone. There was nothing, and is nothing, that anyone can do to really “help”, but having people reach out online, via cards, texts, etc. really did make us feel better. The outpouring of support was surprising. Not that it happened, but the directions and forms it came in really knocked me back. We heard from people we didn’t know or had lost touch with while folks we thought we would hear from were strangely silent. We got more flowers and cards than we knew what to do with and while sometimes that was maddening or upsetting, overall it was a visual reminder that someone, somewhere was thinking about us. I can’t tell you how much that meant and I can’t tell you how grateful I am for those of you who kept reaching out every few weeks just to check in. Grief obscures and it was easy to forget that we weren’t alone after the initial wave of messages. The ones who reached out after the world had moved on? I think about them almost every day. Thank you.
A friend told me that when everything sucks and there is no way to help, send food, and they were right. The last thing we wanted in those early weeks was to interact with anyone and because we weren’t really eating (I lost 15 pounds in a little over two weeks, despite barely moving) we didn’t think we needed food. We were wrong. Friends who sent us frozen baked goods, frozen veg-forward soups and salads, a pizza on a weeknight, etc. were lifesavers. What we didn’t plan on, was that even when we began eating more regularly again, how often a night would come where we had zero energy to make anything. That still happens right now and we have a few of those meals in the freezer yet–thank you friends for making nourishing our bodies easier these past several months.
Acknowledging that our daughter passed. I hate awkward conversations–I’m an introvert at heart and would rather crawl over broken glass than initiate a potentially awkward moment. So I get it, I really do, that when you bump into someone or see them for the first time after something tragic has occurred you don’t know what to do. I’m here to tell you that acknowledging right away that you know, that you understand we’re in pain, and that you’re thinking of us is the best path forward. Something along the lines of, “Hey Ryan, I was so sorry to hear about Maddie’s passing. I cannot imagine what you’re going through. I know there’s likely not anything that I can do to help, but if there ever is please do ask. I want you to know I’m thinking of you and Rachel.” Then you can move on from there and follow the lead of the person you’re speaking with. When folks don’t say anything at all I’m left waiting with that ticking grief bomb, wondering when it’s going to go off, rather than engaging with the person. The only thing you can do that harms here is if you make the other person’s pain about yourself, tell them their loved one died for a reason, or push your afterlife beliefs on them. Don’t do those things, please! But letting someone know you understand they’re hurting really is the least awkward way to handle things.
Talking about Maddie. I think maybe especially in our situation, because we only had a short time with her, it has been both helpful and hard to talk about Madelyn. But it’s a good hard in many ways, because we love her so much and getting to share her life and memory with others helps anchor us to her. When people have asked about how we named her or what she was like (she had such a force of personality in the womb that we really did feel like we were learning who she was even before we got to meet in person) it’s been really nice to be able to share our memories.Self care in the early days. I don’t want to linger on the first day, week, month for very long because it is one, torturously long nightmare of a day in my memory. Safe places to let our minds wander helped enormously. Great British Bake Off show, Rick Steves, PBS painting and woodworking shows, All Creatures Great & Small…any audio/visual format that had overtly kind, good hearted people filled the hours that otherwise would have been spent in silent mental dungeons. Watership Down, a perennial childhood favorite, helped me for much the same reason. Forcing ourselves to get out of bed, shower, and dress, even though we were then only going out to the couch, helped establish a routine. Eating was difficult, but forcing ourselves to have one meal a day and not worrying about the rest helped. Spending 5 minutes to write down the thoughts/feelings that were top of mind made them less sharp.
Self care in the weeks that followed. This was a very long, slow process, of beginning to take the dog for a walk, “exercising” (really going through motions) for 15-20 minutes in the morning, listening to guided meditation, etc. that helped to establish routines that we could then build upon as grief allowed really worked well in keeping us moving forward without feeling forced.
Grief counseling. This took way more time and energy on our part in the immediate aftermath of it all to find than it should have, but it really was worth it. Talking to a professional, experienced in what we were thinking/feeling helped a lot. It wasn’t a magic pill, alas. It didn’t make the pain less and in some ways it was frustrating to hear we were doing all the things we should be doing when we were still in so much agony. But it helped and gave us a cornerstone to lean upon.
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2 years, 2 months agoLjLl
I second this. Knowing we’re not alone. Mutual suffering being comforting is true for so many situations. As strange or selfish as it seems on the surface.
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2 years, 2 months agoginaf
I agree with everything in this post. We lost our first daughter Emerson on her due date in 2020, and every single thing Ryan wrote here resonates 100%. Meal train/prepared food/groceries. I also forgot to eat. Good-hearted TV shows. Doing crosswords and sudokus. Eventually walking the dog (though having someone else do that for the first month after Emmie died was a life saver). Eventually going on long beach walks, being in nature. Reading books on Buddhism actually helped me because there was a lot about the impermanence of everything and the interconnectedness of everything, it made me feel more accepting of my complete lack of control in the situation.
Never ever say it was for a reason or “you can try again”. Never ever ask when they’re going to try again. Never compare it to your/your friend’s miscarriage. Say their baby’s name, say you’re thinking of them and their baby. If they want to share the cause, listen and show empathy, but often people will never know why, so don’t press. I still sometimes wonder if I could’ve known or done something different (the doctors all have said no…) so be sure you’re not adding to that internal fear your sister may be feeling. It’s also so triggering when strangers ask questions about “do you have kids” or ask if my living daughter is my first—if I’m feeling brave I say “she’s our first who we got to bring home”
Now, 3 years later, I still love when people text on Emmie’s birthday to say they are thinking of her. I love when people light a candle on Oct 15, for the “wave of light night”, or give a donation in her honor to organizations like Star Legacy. I love that my dad gets us each a Christmas ornament every year and gets one for Emmie too. I love it when people randomly mention that something made them think of her.
Another book I highly recommend for both parents and family members is Pascale Vermont’s Surviving the Unimaginable. Also plus one on grief counseling. I still see my therapist regularly, and she was critical in getting me through my following pregnancy.
Send lots of love and strength1 comments-
2 years, 2 months agoemjane
Thank you for the phrase “the first we get to bring home” I am filing that away for (hopeful) future use.
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2 years, 2 months agoA dad in VT
My wife’s cousin lost a child late-term. It was of course devastating. She (the cousin) responded by compiling all of the miscarriage and still-born stories that her community shared with her, which were numerous. These stories were heart-breaking, and humorous, profound, and joyful. When my wife had a miscarriage (1st trimester), this document was shared with her. It might sound a little grotesque, but these stories, and others that were shared in person, helped my wife feel so surrounded by love and shared experience. During her miscarriage she felt so alone at times (and had gone to the hospital by herself initially, while i was at work and then finding childcare for our eldest), and these stories showed her how alone she wasn’t. She was able to face the grief and emotions head-on and we were left with sorrow, understanding, and so much love that when we reflect on this experience, the support from our community really stands out.
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2 years, 2 months agoCarly Woollard
I don’t have direct experience with pregnancy loss, but I lost my husband when he was 29 years old, so I unfortunately do have experience with grief, and the big takeaways from processing grief is that there is no right thing to say or do – so don’t put it on your shoulders to “fix” it (and honestly, the things people say to try to make you feel better or “fix” it typically end up being the worst things to say). The most impactful thing for me in the aftermath was just having people be there with me, and allowing me to sit in my grief and talk about it and not try to hide it. It is great to step in and do chores when they don’t have the energy to cook or clean or fill up the car with gas – all without asking, just doing (unless they specifically ask you not to). And finally, remember this is not something that will ever be forgotten – keep saying his name, keep remembering the anniversary and due date even years out. The pain becomes bearable with time but never disappears, and allowing your sister and her husband to remember their little boy years later is so important
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2 years, 2 months agoAnonymous
I’m so sorry for your loss. One sentiment from your comment I’d like to echo: It’s helpful when others continue to make ample space for you to talk about your grief and your loved one. Letting them know there’s no expiration date or limit on how often and for how long and how much of the conversation is occupied by remembering and processing. Sometimes it can feel like a self conscious thing to wonder if folks are reaching their limits on hearing you talk about your person / grief. Letting them know there is no limit, and the conversational space is always there, can be really helpful.
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2 years, 2 months agoChicago Mom
We lost our first daughter at 41 weeks, and the experience was devastating and disorienting for us, our family and our friends. Asking the question already suggests that you’re doing the right thing because you want to be thoughtful about it… and trying to meet your sister where she’s at. Highly recommend therapy for the grieving and grief adjacent, and here are a couple other things that helped our healing.
Nora McInerny
Podcaster and author, I can’t recommend her book enough — it’s a terrible title but really good content (hot young widows club). She also has a podcast…. Terrible Thanks for Asking. I needed, and loved the episode “a henry sky.”Medium | Revealing Soul, Molly Morningstar
I had never thought to talk to a medium before we lost our daughter (other than for entertainment). I didn’t get closure from talking to a medium… instead, it nudged me to stay open and feel more connected.
*if full medium feels like too big of a leap, then “Signs” by Laura Lynn Jackson is a good start too.Friends
I felt sad and really isolated after our daughter. Some of things I craved was the space to talk about my daughter / to make sense of it (as much as i/we could), and not feel like I’m bumming everyone out.
With those that I love and trusted, I didn’t want to be avoided or given my privacy… I just wanted space to talk and cry.Sending love to your family. 💕
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2 years, 2 months agoLucy
I second the Nora McInerny and “Terrible Thanks for Asking” recommendation
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2 years, 2 months agoMaddie
I had a second trimester loss. For me, the worst part was, after having announced we were pregnant, having to announce we weren’t anymore. Particularly with close family. I did not want to grieve publicly or be responsible for guiding others through how to feel about it. I didn’t want adults crying around me and scaring and confusing my other kids. My sister stepped in as kind of head of communications- so the family member who really wanted to have a good cry about it was directed to her. She took our kids for a night so we could process without worrying about how our tears might be perceived by them. And then a thing she and I have developed is when we know the other is in a hard spot, we ask, “How are you doing?” This makes space to talk about it if you want. Or not if you don’t want.
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2 years, 2 months agoSarahesea
This was also really helpful to me in the early days after our loss: https://whatsyourgrief.com/growing-around-grief/
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2 years, 2 months agoaccess@mattered.com
This happened to one of my best friends. And it was devastating. A few things:
1. We discussed and she didn’t want to have to tell all the people who had recently come to her shower, so she asked me to draft an email on their behalf. In the email I asked people to give space for grieving and they’d reach out when ready. This took pressure off them and gave them space to be together.
2. Just being there and knowing that the grief process is real – it’s not linear. If you have a newborn, consider how that could impact them and maybe give space from your young one and them.
3. Set a calendar reminder for the day, so every year you don’t forget to reach out and honor their little one. They certainly won’t forget but other people move on quickly.
4. I had a star named for their little. It was a small thing, but one way I wanted to pay respects.Just be there. And also be aware of secondhand trauma. I got pregnant with my second not long after and that pregnancy was wrought with anxiety from what my friend had gone through. I wish I had realized it for what it was and why in the moment, but it was only in reflecting later that I could name why that pregnancy was so challenging.
Sending love to you and your sister.
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2 years, 2 months agoLucy
Yes to 1, 2, and 3 in particular for me! For the first suggestion— with a late term loss everyone in your social groups saw you visibly pregnant and knew you were pregnant so they will assume that if they don’t hear from you for a few weeks around your due date, it’s because you are spending time with your new baby. It was very helpful to have friends break the news to our gym community, work colleagues, and clubs. Plenty of people who didn’t get the sad news still asked us the next time they saw us “how’s the baby doing”, “they’re how old now?” and it was painful every time. I’m glad most people had been told by someone else because I can’t imagine if it had been more.
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2 years, 2 months agoCaitlinA
I had a star named for my son also. I also had a ring made with his birthstone and birthday. I don’t know why these felt like the things to do, but they did bring me comfort. I now have 2 rings for my birth children as well.
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2 years, 2 months agosmashleigh@gmail.com
Calendar reminder in particular.
My sister’s older daughter would have been 11 years old this year.
I make a donation to the children’s hospital where she was cared for (she died shortly after she was born from complications during delivery) and sometimes I send a card or a balloon. But I always send a text and we always use my niece’s name.
My sister-in-law’s son died at the same hospital at 9 months from a genetic condition – we do the same for in his name.
My children are 6 and 3, we make sure they know they have cousins they will not be able to meet. This includes these missing children in our family and we make sure we share with them.In the early days, meals, gift cards for restaurants (ordering in). Hospital parking passes (as applicable) and like so many others have said – use their names.
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2 years, 2 months agoMamaJu
After experiencing the loss of our daughter at 28 weeks, I found it helpful to talk about my experience. I appreciated the friends who let me share the birth story, said Riley’s name, and listened to me whenever I wanted to speak about her, the pregnancy, or labor.
I definitely was not up for cooking, so gift cards and meals were appreciated too.
I listened to other loss mom’s stories on podcasts. I could relate, laugh, cry and just be in my feelings.
Oh and this might not appeal to everyone, but a couple days after I gave birth to Riley, my husband and I bought a couple outdoor power tools. We found ourselves enjoying yard work & power washing anything I could spray. It was therapeutic and kept my mind busy, even if I had to stop and cry every so often.Sending prayers to your sister and your family. The grief will in time get lighter, but everyone’s journey is different.
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2 years, 2 months agoELD2024
Note to self… power washing… need to remember that one.
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2 years, 2 months ago
emilykitchenFirst off, I’m very sorry for your sister’s loss. I’m a perinatal mental health therapist and I work with women & men who have lost a child, pregnancy (miscarriage & stillborn) and the biggest thing I can recommend is to get her & your brother-in-law support through a support group &/or therapist that is trained perinatally. Also I recommend to say specific things that you’re going to do like a meal train, chores, give her a distraction by talking about anything else other than her grief, sitting with her & asking how she’s doing. It’s hard when you get inundated with people asking how they can help. I suggest this e-mail subscription that she would get daily basis that helps with pregnancy grief: https://www.daylightcounselingnj.com/first-30-days
Just being there for her where she’s at is the biggest thing you can do.0 comments -
2 years, 2 months agoezrasmom
As a mom whose son was stillborn at 38 weeks last year, I’m so sorry for your sister’s loss of her son and for your loss of your nephew. And I am grateful to you for asking the question and for this ParentData community for including stillbirth in these discussions of parenting experiences. A long list of off-the-top-of-my-head thoughts for what helps and doesn’t help:
-Many people have already said it, but talk about your nephew, now and in the months and years to come. Your sister will always be thinking about him. In the context of close family, this might mean including him if you’re listing the names of cousins or of your nephews, for example. If you’re asking moms about a normal pregnancy experience (“did you try prenatal yoga?”), include your sister as a mom.
-The best gifts I got included anything warm and cozy (sweatpants, a blanket, socks, a gigantic sweatshirt-blanket from my own sister that I have practically lived in for much of this year since) and practical (many boxes of tissues, lip balm, fruit, a Venmo collection from my coworkers to help us immediately pay the funeral and hospital bills). We asked for donations in our son’s memory to Helen Keller International, to help save other babies, and it means so much to think that he had an impact in the world in that way. We didn’t need the many flowers or desserts as much, but every single time we opened the door and found someone was thinking of us, it meant so much. A card in the mail a few weeks or months later was also deeply meaningful — I remember those cards better than the ones in the earliest days.
-There are many organizations (Hayden’s Helping Hands is a good one) that will cover funeral or hospital bills for families that have a stillbirth. You can do this research for your sister now so she doesn’t have to. You may need to act quickly to get this assistance.
-Make sure the hospital saves the placenta. That will give you the option down the road of choosing to have a placenta analysis, if you want, to try to find out the cause of death. The hospital might not be competent to answer but there are specialists (Dr. Harvey Kliman at Yale, most notably) who can analyze the placenta months later, if you save it, even if your doctor tells you (commonly, and often falsely) that the cause of death can’t be determined.
-Your sister is still a mom who just gave birth and most of the normal needs for support apply. I found a Zoom with a lactation consultant helpful during the awful days when my milk was coming in. (The only truly useful thing she told me: Three days. The worst pain will be over in three days.) A friend connected me with her pelvic floor physical therapist for a Zoom session about how to recover from physical injury from pregnancy. I appreciated that Studio Bloom’s postpartum exercise videos didn’t have cutesy lines about exercising alongside your new baby.
-Family and friends often want to disassemble the crib and whisk away the nursery items. Moms who had stillbirths often regret this. Don’t bring up the baby stuff unless she does. Let her deal with that in her own time.
-The best book: “An Exact Replica of a Figment of My Imagination.”
-Tell her friends to keep checking in on her. She’ll need months of support, not days or weeks. A text to say “I’m thinking of you” is such a kindness.
-Even with all the support in the world, there will be nights she doesn’t feel like she has someone to call. Tell her that you can be that person, always.
-What has helped me the most, by far, is knowing other moms who have been as low as I’ve been and are now (years later) genuinely okay. That is what makes me believe that I will be okay someday. I had two colleagues who went through stillbirths about five years before mine, and they have been guiding lights for me. The support groups and Facebook groups have been more of a mixed-to-negative emotional experience for me. But I hope your sister finds those people who make her believe she’ll be okay even when she doesn’t feel it. If I can ever help somehow, I’m here to talk: jzauzmer@gmail.com. I’m rooting for your whole family. I wish you were holding your nephew right now.1 comments-
2 years, 2 months agoLucy
In particular I can relate to the importance of being included in conversations as (and treated like) a mom and birth parent! We also kept our nursery as it was and all the baby items and I’m so glad we did. It gave us a place to grieve and be with our daughter when there weren’t really any other physical reminders of her available.
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2 years, 2 months ago
Dad in TXI did not write this… but it helps.
Alright, here goes. I’m old. What that means is that I’ve survived (so far) and a lot of people I’ve known and loved did not. I’ve lost friends, best friends, acquaintances, co-workers, grandparents, mom, relatives, teachers, mentors, students, neighbors, and a host of other folks. I have no children, and I can’t imagine the pain it must be to lose a child. But here’s my two cents.
I wish I could say you get used to people dying. I never did. I don’t want to. It tears a hole through me whenever somebody I love dies, no matter the circumstances. But I don’t want it to “not matter”. I don’t want it to be something that just passes. My scars are a testament to the love and the relationship that I had for and with that person. And if the scar is deep, so was the love. So be it. Scars are a testament to life. Scars are a testament that I can love deeply and live deeply and be cut, or even gouged, and that I can heal and continue to live and continue to love. And the scar tissue is stronger than the original flesh ever was. Scars are a testament to life. Scars are only ugly to people who can’t see.
As for grief, you’ll find it comes in waves. When the ship is first wrecked, you’re drowning, with wreckage all around you. Everything floating around you reminds you of the beauty and the magnificence of the ship that was, and is no more. And all you can do is float. You find some piece of the wreckage and you hang on for a while. Maybe it’s some physical thing. Maybe it’s a happy memory or a photograph. Maybe it’s a person who is also floating. For a while, all you can do is float. Stay alive.
In the beginning, the waves are 100 feet tall and crash over you without mercy. They come 10 seconds apart and don’t even give you time to catch your breath. All you can do is hang on and float. After a while, maybe weeks, maybe months, you’ll find the waves are still 100 feet tall, but they come further apart. When they come, they still crash all over you and wipe you out. But in between, you can breathe, you can function. You never know what’s going to trigger the grief. It might be a song, a picture, a street intersection, the smell of a cup of coffee. It can be just about anything…and the wave comes crashing. But in between waves, there is life.
Somewhere down the line, and it’s different for everybody, you find that the waves are only 80 feet tall. Or 50 feet tall. And while they still come, they come further apart. You can see them coming. An anniversary, a birthday, or Christmas, or landing at O’Hare. You can see it coming, for the most part, and prepare yourself. And when it washes over you, you know that somehow you will, again, come out the other side. Soaking wet, sputtering, still hanging on to some tiny piece of the wreckage, but you’ll come out.
Take it from an old guy. The waves never stop coming, and somehow you don’t really want them to. But you learn that you’ll survive them. And other waves will come. And you’ll survive them too. If you’re lucky, you’ll have lots of scars from lots of loves. And lots of shipwrecks.0 comments -
2 years, 2 months agokarogray
What we found is that a lot of people are sad for the baby and they don’t realize that you are the one in pain. It’s a horribly lonely experience and just checking in and being there for her – in person or by sending texts, Instagram memes, or calling – and giving them someone to talk to, even if it’s about something else, will help them feel less alone and help them get out of their head for a bit. I’m so sorry for you and your sister.
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2 years, 2 months agoLucy
Hi Heartbroken Sister. My daughter Maeve died on her due date a little over two years ago and we’ll never know why. All my love to you and your family. I’m sorry you all are now a part of this shitty club. (1) A really hard and unexpected part of grieving at that time was knowing that the loss affected my immediate family and close friends too, but my husband and I so desperately didn’t want to see anyone or talk to anyone for many weeks. We needed our people to understand that we loved them so much but we were so deeply hurting and devastated that we didn’t have strength or space to be with them. It’s such a unique type of loss, please don’t take it personally if your loved ones don’t use you as a primary source of processing and grieving outlet— we found joining a small, closed, local perinatal loss support group (that was for parents only) to be incredibly helpful to us. (2) I can still remember every single “thinking of you <3” text that people sent. Those meant the most— no pressure, *zero questions*, just acknowledgement and a love check in. Especially when we were getting past month two and a lot of people dropped off from sending messages— I promise we were still thinking about her every day well through the first year. You are not bringing up sad feelings or making us feel sad by saying their name in a text or sending a ‘thinking of you’ message at any time! (3) Don’t be afraid to get or do specific things for the grieving parents that feel meaningful to you, just leave space for them to say no. “Let me know how I can help” meant nothing to me at that time because I couldn’t even figure out which way was up let alone say what would help me. The only gift cards we used that people gave us were for food delivery (Door Dash, etc), everything else felt weird to receive like we were getting money for our loss. It did became almost comical how much soup people gave us, so if you want to cook maybe something else easy to reheat. (4) Send them recommendations of TV shows to watch. We liked mindless action movies and gentle comedies like BBC Ghosts. Use the website doesthedogdie.com to check for trigger warnings about infant and child loss!
xoxoxoxo Lucy and Sean0 comments -
2 years, 2 months agoaccess@mattered.com
Hi there-I lost my daughter Penny at 38 weeks as well. Here are a few things people said and did that really made a huge difference for me:
1. Don’t ask what you can do, offer two concrete things for them to choose from. Your body/mind are in shock and you don’t have the presence of mind to know what you need. Having someone say “I am going to cook you enchiladas or send a cleaner to clean your house. Which would you prefer?” removes the mental load from the griever
2. Ask their baby’s name and say it often. Even two and a half years after losing her, my friends will text every now and then “I was just walking past some pretty flowers and thought of Penny. Missing her today.” It feels so good to hear her name and to know other people miss her.
3. Be there as a sounding board for the hard stuff. Infant death requires so many excruciating decisions of postpartum moms-do you want a memorial service, do you want to bury or cremate your baby? They are dark and hard questions made even harder because it feels taboo to talk about. My sister flew in and wrote and performed our small memorial service and I will forever be thankful that she gave us something I didn’t have the presence of mind to do
4. Do NOT say “things happen for a reason” “you can try again” “at least you have your health/your other child/anything” “try to keep your chin up” Do say “You are stronger than this. I wish you didn’t have to be. But you are.” “I am here for anything you want to say. Don’t feel like you need to shield me, I want to sit in the dark with you.” “This is hard and I’m so so sorry.”
4. Do not worry about bringing up their baby (ok maybe not in an office full of people or in front of a giant family crowd, but one on one, always open the door to talking about it)-you’re not going to upset them. They’re already thinking of their baby and their grief all the time. Bringing it up will be like relieving a pressure valve.
5. Be in it for the long haul. There’s an outpouring of help a month or two afterwards but the hardest time by far is once the flowers stop coming and life starts again. Set calendar alerts every few months and on holidays/the baby’s birthday to check in.
I’m so so sorry for your loss. Sending love to you on your own grief journey.
-Colleen1 comments-
2 years, 2 months agoLucy
Oh my, 1,000x yes to every one of these things 💜
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2 years, 2 months agoIsabel A
My son died and was stillborn at 39 weeks 1 year ago due to a cord accident. People have been so amazing and supportive, and people have been absolutely horrible in their reactions to my loss. Here are my recommendations:
1. If you really want to understand the grief that comes was tragic losses, read Megan Devine’s it’s ok to not be ok. Follow her Instagram refuge in grief. It’ll become clear you shouldn’t focus on “how to help” because there’s no fixing the death of a baby. There’s no right thing to say. Mirror back your persons reality. Make them feel seen in their pain. The death of a baby is tragic. It’s rare and there’s a lot of questioning why and could this have been prevented with better medical care. It’s not “normal.” We carried them for the better part of a year and birthed them into the world. There is intense trauma. Have you ever seen the corpse of a baby or child in person? The trauma of that alone cannot be stated enough. For me, one of the worst parts was dealing with such hurtful comments that intended to be helpful. Those good intends do not cancel out the pain the comments inflict. Platitudes like “at least you have another child,” “everything happens for a reason,” “you’re so strong.” Very often other people would very inappropriately compare my son dying full term to their or their friends’ 6 week miscarriages. It never helped and just made me feel like they were minimizing my loss. The worst was silence. People so uncomfortable that they just didn’t say or do anything at all. Trying to act normal made things worse. My parents would only talk about the weather with us for months. It became painful to be around them.
2. Don’t ask how to help. Just do things. Flowers, meal trains, letters, memorial gifts, etc.
3. For me, after the first few weeks it became critical to my survival to feel like others remembered and loved my son. One of the hardest parts of losing a child to stillbirth is that society often makes you feel like you made it all up. Like your baby never existed. People made comments as if I had not just spent the last 9 months pregnant, as if I had not just given birth. My sister in law asked we weren’t at work 1 week after my son was stillborn, as if nothing had happened. So I needed to share pictures of my son with people, so they could see he was real. I needed people to tell me THEY love and miss my son, so I didn’t feel like the only one in the world who cared. Hearing my son’s name from other people’s mouths, seeing it in writing, having him included in the count of my family, truly was a life saver. Remembering milestones is helpful too, the monthly anniversaries and then the first birthday.0 comments -
2 years, 2 months agoaccess@mattered.com
I’m so sorry for the loss of your nephew. Here is a random grab bag of things people did after the loss of my daughter Penny that really touched my soul:
-Donated books to a library in her name
-A friend wrote her initials on some rocks with her middle name Hope on the back. Whenever we travel or go for a hike, we bring one and leave it-it feels good to bring a bit of her spirit with us and to spread it through the world
-Donated to the park where we held her memorial
-Hired a postpartum masseuse to come to the house for me
-Bought me the Stevie Wonder record Songs in the Key of Life” with the note “I put on the song ‘Isn’t she lovely’ and dance and think of your daughter, Penny. I thought maybe sometime you might want to do the same.” It touched me to know someone was thinking of Penny and it gives me a little ritual to feel connected whenever I’m missing her
-Including her in holidays. My aunt gave us a Christmas stocking with her name on it and it feels good to see it hanging there as an equal part of the family, a small reminder she’s with us in every holiday
-We think of her as a butterfly and on her birthday, my friend covered our hallway in paper butterflies
-Made a cake on her birthday. To people who haven’t lost a baby it might seem morbid but just because your child died doesn’t mean their birthday doesn’t matter. I want to celebrate her life and while her birthday is often painful, it’s a sweet pain of remembrance.Sending so much love to your family right now.
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2 years, 2 months agoArchiesMom
When my son Archie died after 6 days in the NICU, here’s what I remember being a comfort:
Meal Train – so much love and it takes the burden of decisions, cooking and cleaning off the family.
The only thing said the stuck with my was: “I’m so sorry. I don’t even know what else to say. I love you.” It was so genuine and hit on exactly the right sentiment. You can’t say a single thing that will help other than acknowledging how awful it is and that you love and support the family.
Say the baby’s name, and remember them every year.
Ask the family if there are signs that remind them of the baby (an animal, rainbows, etc) and tell them when you see the sign and think of the baby.
In the early days of grief, if you’re invited, sit with them and follow their lead. My good friend came and watched Magnolia Tv with me. We chatted a bit and laughed at the mishaps on the show. It was nice to have someone there without the pressure to talk. We also cried together plenty.
If you think they’re open to reading it, Empty Cradle, Broken Heart is a very validating book. It talks about various approaches to grief and how grief changes over time – specific to baby loss. It made me see that my husband is an active and social griever. He wasn’t ignoring anything. He just needed to be in motion, which is the opposite of me. It’s so important to understand this as a couple.
Offer to do anything that might be challenging. They don’t want to go to an appt, offer to call to cancel for them. Grocery shopping. School drop off for other kids.
I found it was easiest to talk to the people who were able to hold both grief and normal conversations – and switch quickly back and forth. Sometimes you want a light convo and sometimes you want to be so incredibly sad.0 comments -
2 years, 2 months agoCaitlinA
After going through a failed adoption 3 days before his birth, I really needed people not to ask me about it because I just couldn’t talk about it at the time. Unfortunately I think people took that to mean I didn’t need their support, and I am a strong person that can generally handle things on my own, but as others have said, I wish people had just been there to make sure I was eating and showering and just generally surviving. Everyone just acting like it never happened almost made it worse.
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2 years, 2 months agoErinA
That loss sounds absolutely horrible. I am sorry for your sister. I had a loss at 20 weeks after a lot of fertility struggle— not nearly as late as your sister but late enough that we thought we were out of the woods. A few thoughts, some of which echo what others have said and some of which may conflict:
1) In any grief or difficult situation, specific offers (ie “would you like me to bring you dinner?” As opposed to “I’m happy to help”) are always great. Even if the person says no, that means you know more about their needs and preferences.
2) Having close friends tell others was something I really appreciated. I did not want every interaction to have to be about the loss.
3) If your sister had already set up a nursery or received lots of gifts, offer to pack away the baby stuff for her. Baby clothes are not adorable when you just had a loss.
4) For some people a late loss means they lost a BABY who had a name and a relationship with them, and they want to have a funeral. For me it felt like I lost a PREGNANCY that I had worked at for over a year and I didn’t love baby language. Either way, pay attention to how your sister talks about the loss and follow her lead.
5) As others have said, keep checking in! With any loss, most of the support comes in the first week or so and then other people go on with their lives while you’re still grieving. I needed people to talk to and ask me about other things so that every conversation wasn’t processing my miscarriage, AND I needed people to occasionally ask how I was doing weeks and months out.Last, your sister may not want to be around babies or pregnant people for a while and you may be able to help her steer around those situations. And I don’t know if she has a partner, but sometimes the non pregnant partner gets forgotten and they’re grieving too while also likely supporting their partner. So make sure you also check in with the partner.
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2 years, 2 months agoegrif
Almost a decade ago, a dear friend gave birth to premature twins — a boy and a girl — who only lived a few hours.
Years later, when my own sibling experienced a stillbirth, this friend provided compassionate guidance to help me support them (from across the country, during COVID). But it was two things she said to me right after her children died that were most impactful: “Sometimes I just go in my room and cry because I know what a baby coffin looks like” and “Sometimes I just want to scream and yell and cry, but I can’t just call people up to do that.”
When my dear nephew died, my first goal was to make sure his parents didn’t have to know what a baby coffin looked like. I coordinated the baby’s transfer from the hospital morgue, to the autopsy location, to the funeral home from across the country. I was able to do almost every thing — at one point there was a form that my brother and his wife had to docusign. I also arranged for baby’s cremains to be delivered by someone at the funeral home rather than FedExed (!?!?). I also found a few options for personalized urns online and sent them to my brother and sister in law, letting them make the decision, but hopefully sparing them having to wade through the dreck. There are a lot of these kind of difficult administrative tasks that happen after stillbirth. Some of them you can do as a third party. Some you can’t. Do the ones you can. Ask if they want a ceremony, curate it to a few choices, and present those. Sent postpartum supplies (remember, mom still gave birth!). If mom wants to pump and donate milk, coordinate it. If they have older kids and you live near by, take them to school and their activities. Send meals and treat and flower. My brother and sister-in-law don’t know what a baby coffin looks like. I do. This is one of my dearest accomplishments in life.
Pick up whenever they call. And call them every day. I told them up front what my friend had said and told them I was going to call every day. That they didn’t have to pick up if they didn’t want to talk and they should feel no obligation, but if they wanted to scream and cry and yell with someone, I was going to give them that opportunity every day. Also if they wanted to talk about anything but the tragedy that had swallowed their lives. No judgement. I called every day for many many days. Most days they picked up, some they didn’t. This was not easy. I had two young children of my own and was working a full time job and it was COVID. My husband is a hero. On my birthday a few days later, they wrote me a card that included how many days in a row I had called (it was dozens). They counted. Because it mattered.
Remember their baby. My nephew has been dead for a few years now. I still reach out when something reminds me of him or their experience with him. I donate to their chosen cause on his birthday. My children know his name. He’s part of our family.
Please support your brother-in-law as well, or try to encourage the appropriate people to. Both my friend and my sister-in-law felt like their husbands didn’t get the support they needed from family and friends.
Take guidance from your sister and brother-in-law. Keep doing what they respond well to and drop what they don’t. Don’t take anything personally.
Understand that all of this is helping along the margins. There’s absolutely nothing you can do with the big thing. Their baby is dead. It’s awful and unfair and there’s nothing anyone can do about it. What you can do is let them know that they aren’t alone in their grief or their love, and ease as many of their other burdens as you can.
I’m so sorry for the loss of your nibling. I am a better mother, sister, wife, friend and person than I was before my nephew’s brief time in our lives. This is a small consolation for the death of a baby, but it’s a real, tangible legacy. He’s there every time I agree to an extra song at bedtime even though I’m bone tired and still have work to do. He’s there every time I’m able to pull myself back from the edge because my six-year-old won’t just put on his shoes so we can leave from school. He’s there when I’m able to stay calm and focused on the way to the ER after a nasty fall and a broken bone. He’s in every hug and kiss and wiped away tear. And my brother and sister-in-law know this. They know that their son transformed us and lives in us.
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2 years, 2 months agoJess
I’m so sorry for the loss of your nephew.
My first pregnancy ended at 25 weeks, and what helped me most was safe, loving spaces to talk about it. Family and friends who reached out with empathy and kindness, and who listened while I tried to process the hardest thing I had ever been through, both physically and emotionally. Continued check-ins over time and not being afraid to mention my daughter felt very supportive, and continue to make me feel loved 2+ years later.
What I didn’t know I needed at the time was to treat myself like the postpartum mom I was, physically. Especially at 38 weeks, your sister will be going through all of the postpartum shifts – body trying to lactate, hormones all over the place, body in rough shape from nine months of pregnancy – without being able to hold her baby and while trying to manage her grief. If you can, help her be gentle with herself. I wish I had done all of the things I did after my second pregnancy: rested, taken it very, very slow as my body healed, seen a PT specializing in pelvic and orthopedic health when appropriate (usually six weeks postpartum or later), and acknowledged the very real and very major changes my body was recovering from.
I’m sure this feels very far off to everyone right now, but if your sister is pregnant again in future, know that it is likely to be an incredibly stressful experience for her. I struggled hugely with anxiety during my second pregnancy, and had such a hard time believing that it was going to result in me bringing my baby home. Having people acknowledge that and check in on me didn’t lessen the anxiety, but did help me to feel less alone in it.
Again, I’m so, so sorry for your family’s loss. Your sister’s baby will always be her son, will always be your nephew, and it sounds like will always be so, so loved
by his whole family.0 comments -
2 years, 2 months agoAnniepaigebernard
I recently lost my daughter an hour after birth.
People say “no one talks about grief” but the fact is – almost everyone has an experience with grief, and does talk about it.
I found to my surprise that I didn’t want to talk about it with others. I felt immense pressure to perform sadness for others, and I prefer to deal with my grief privately. I’m good at asking for help, so this works for me. I ask for help and share when I need it.
Understand that your family member may not conform to what you expect their grief to look like.
As my uncle recently told me (he lost his first wife after a ten year battle with cancer) – “some people find denial at Starbucks traumatizing, others lose a child (or a beloved wife) and keep moving forward in spite of it.”
The people who have comforted me the most are the people in my inner circle, by just continuing to live life with me, and acknowledging my daughter, but not treating me any differently – I crave this normalcy. Let them be, and just be with them. Follow their lead. You’re probably going to say things that are wrong, but try anyway. Don’t make it about you. Bring food or DoorDash gift cards. Gift meaningful jewelry (@madebymary is a great place to start). Don’t impose your beliefs of the afterlife or spirituality on them. This will be more annoying than comforting. There is no formula for grief, no magic potion to take it away. It needs to be experienced, it’s a gift to experience. It is a form of love.0 comments -
2 years, 2 months agoemailalhays
I haven’t experienced a loss personally, but I worked with a number of women who did as a hospital chaplain. I remind myself that usually telling the story of what happened and what it means to someone is helpful in grieving, and usually people have to tell their stories a lot of times to process what happened. And also depending on the day and your relationship with the person, it may or may not be a moment when they want to talk about it. Losses can also mean extremely different things to different people.
You could open the conversation first by asking if they want to talk about it and then if they do by asking something like, “what was this pregnancy like for you?” or “would you tell me the story about how your loss happened?” Or “I would love to hear more about what happened, whatever you want to share.” Try to use more neutral language until you hear how they are referring to their loss, and then refer to the loss the same way that they do, they might say “pregnancy” or “baby” or call their child by name. They might say “loss,” or they might say, “died”.
Even if it has been years since the loss happened, people still often appreciate being asked about it. Other people may have moved on, but for the person who had the loss most directly, it is often a part of their life forever. It can be hard for people to know who and when they can talk about something so sensitive, and once you’ve opened the conversation, the best thing to do is listen, even though it may feel uncomfortable for you, rather than trying to make them feel better or different. They feel how they feel and you won’t be able to convince them to feel differently, but you can be with them as they fee those things so that they feel less alone.
Asking directly about details based on your own curiosity, giving advice, or telling a story about something you experienced that feels similar are things you generally want to avoid, or at least not start with. Although if you genuinely have a very similar experience, like a pregnancy loss, you might mention that and see if they want to hear more about it. People want to know they’re not the only one going through something, but they also want to feel that you understand what they specifically are going through, rather than assuming that you already know how they feel.
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2 years, 2 months agoCaroline
I had a third trimester stillbirth last summer and it’s the worst thing I’ve ever gone through. The grief is immense. Here are a few things that helped:
-Show support without expecting anything in return, and be patient. For the first couple of months after it happened, I was so drowning in my grief that I could barely leave the house or talk to anyone. Answering emails and texts was hard and sometimes I couldn’t do it. But I still appreciated hearing from people, so send the text or email, just be okay if they don’t respond. Drop off food but don’t expect to socialize. Grief is hard and sometimes it takes up all your energy and you don’t have any left over for socializing or communicating.
-Say their baby’s name and ask to see pictures. Keep mentioning their baby as time goes by, especially on holidays or special occasions. You won’t make them sad by reminding them that their baby died— they already know that. You would make them way sadder by making them think their baby has been forgotten.
-Ask how her physical recovery is going. It SUCKS to be postpartum but not have a baby to show for it. You still go through all the normal postpartum stuff but it’s like people expect your body to be back to normal when there’s no baby.
-Be gentle and understanding if they can’t handle being around babies, pregnant people, pregnancy announcements, etc for awhile.
-Be cognizant of their baby’s birthdate/death date and know that that day or those days will probably be triggering for them. Ask them how you can support them on the anniversary next year of if they want you to help celebrate their baby. Your child dying isn’t a one-time event that is over and done; you miss them at every milestone and continue parenting them even after they’re gone.1 comments-
2 years, 2 months agoCaroline
Also, be someone that they can talk openly about their baby with, even when you don’t ask, as time goes on. I’m 7.5 months out from my daughter’s death and I still have some very hard and griefy days and I’m glad I have friends that I can talk about it with instead of feeling like I have to carry it all myself.
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2 years, 2 months agoRyan
I echo all of these tips. And being there for them for the long haul. My wife and I had only felt our ‘normal’ (pre-losing our daughter) selves a handful of times after 18 months. It’s been better in the six months since, but joy is still fleeting. It takes years.
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2 years, 2 months agoTessaM
So sorry for your sister. Our first daughter was stillborn at 36 weeks. It was terrible, and it always will be, though it does get easier. I most appreciated the friends who talked about her, acknowledged my experience, and didn’t try to ignore it or brush it off as a miscarriage/“just” a pregnancy loss (someone told me we’d have more kids – not helpful). Fewer people bring it up now that it’s been four years and I really appreciate those who do. Anniversaries are hard, so remembering the anniversary helps. And if she goes on to have more pregnancies, recognizing that they are very anxiety producing and traumatic for her. Personally, finding other people to talk to who had experienced the same thing and getting a puppy really helped me, through the grief and future pregnancies. We now have two living daughters that I’m so grateful for, and that helps but doesn’t completely minimize the grief of our first. Best of luck to your whole family.
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2 years, 2 months agomindysdaughter
Last summer I developed severe preeclampsia at 23 weeks, had to end the pregnancy to save my life and my daughter did not survive. It was so violent, such a shock. Nothing can prepare you for this experience. Things that people did that I appreciated: anything or nothing. Others have said this but anything that just appears is lovely. I found it almost intolerable when someone would ask what they could do to help, or if I needed anything. One friend sent two giant Muffuletta sandwiches from New Orleans through Goldbelly and I still think about those grief sandwiches. One friend just showed up and stayed with me for a few days. We watched an old season of Project Runway and she rubbed my feet and cried with me. I’ve found it healing to tell the story of what happened in detail to close friends. It’s allowed me to transform this horrible thing that happened to me, into a narrative that I have some power in shaping. Make space for her to share her story and cry with her. Ask if she wants you to share what happened with others and in what level of detail. I found it very stressful to interact with people who didn’t know, especially when I returned to work. It felt like it might accidentally come up at any moment and I had no control of my emotions at the time. I think people want to be respectful of something so personal, but I honestly wish others had taken the burden of spreading the news. One other thing, keep reaching out even if she doesn’t respond. Another friend had had a baby a few weeks before I lost my daughter. She texted me every few weeks to let me know she was thinking about me and that she understood why I couldn’t talk to her. I didn’t respond at all for months, but she kept doing this and that meant a lot.
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2 years, 2 months agoKara
Sending food/meals and trying to help with whatever else they normally need to care for (older children, pets, etc). And not to diminish their loss by taking about someone who had a later loss. Sending a card to them on their child’s birthday to show you are remembering them and thinking of them.
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2 years, 2 months agotomveron
I’m sorry for your family’s loss.
Try to remember the anniversary of the birth in the coming years, and check in with your sister on how she wants to commemorate it.
We lost our daughter at 32 weeks in 2019, and many of the things people suggesting here helped a great deal. Grief is also a long, nonlinear thing, and it’s a great comfort when that date comes around when people a) remember, and b) support us in commemorating her however seems appropriate at that time.
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2 years, 2 months agoKristen
These comments cover so much. Our daughter died at 39 weeks in 2022. Rose was/is our second child. We just had our third in December. I have this idea of a Netflix comedy special for the child loss club – well-meaning people have given me a lot of material. I have a grief mom friend, and we joked about making a drinking game for every time someone said “I’ll pray for you.” It might mean a lot to someone, but almost everyone I know in deep grief finds no comfort in it. We didn’t do it, of course, because we would never have been sober in the first year. People say it a LOT.
In the early days, I wanted to be cared for like when I have a cold…groceries, food, being tucked in, sobbing into someone. At around 6 months, people seemed to forget my daughter. I longed for people to ask about her and say her name. Around a year, I was so angry I could have used someone to rage with. Pregnancy was 8 months of terror and anxiety the likes of which I am amazed I survived…so much PTSD (and therapy). The long game is where we are now. And we crave people referencing our three kids, not just our two living children.
At each stage, I wanted people to check in with me weekly or more. I wanted someone to ask how my grief was evolving and how they could help me feel close to my daughter. I wanted people who would not point out silver linings but instead sit with me while I cried…every day. I cherish people who say her name on every single phone call or text thread. I crave a Christmas present for her or one for me that represents her. I all but abandon people who leave her name off cards for our family. I cannot fathom having a meaningful connection with anyone who doesn’t see her in my life. And when I meet someone, and we talk about our families, I tell them about all three of my kids.
Amid all these amazing ideas in the comments for the short term, I wanted to share some thoughts for the long term. I found my grief mom friend in a pregnancy loss support group (mercy, please separate the miscarriage and stillbirth groups, y’all, the experiences are so different). And having someone who knows the inside of this is profound. People who haven’t been through it are solid support for me…and she’s kindred in a way I don’t want my family to ever understand. I need both.
Also, don’t be like the rest of the world and forget about both parents’ grief. They are facing the hardest thing they will ever go through, and their relationship is vulnerable. The data on divorce after child loss is astounding. What support can you offer so they can grieve together?
Google what you don’t know. Ask for her specific preferences. Show up. Show up. Show up. And show up some more. (Not unannounced, that’s heinous)
The very idea that you want to know how to better support her is a sign that you already are. People who were curious about this were the ones who offered meaningful support. Please process your grief with those further out in terms of ring theory. I’m sorry for your loss and what the world lost in the light of that amazing child.
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2 years, 2 months agoAnonymous
I’m so sorry to hear about your family’s loss. I echo all the previous comments. I have lost two daughters and one son between 22-24 weeks. Each loss was devastating and I dealt with the grief differently after every loss. One thing that has stood out to me as the years have passed, is when my friends/family remember the anniversaries of each of my children. So often after the initial grieving period I felt like everyone else moved on and I was still here remembering that I have lost three children. When a friend reaches out to let me know they’re thinking of me on the anniversaries, it means the world. One of my best friends commissioned a bracelet for me with the birth stones of my children. I wore it everyday until the strap broke. Everyone is different and some people don’t like reminders of loss, so you can navigate that with your sister, but keep those anniversary dates in mind. Your sister will never forget.
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2 years, 2 months agoMuddyHolly
Finally, a parenting data question that I can (sadly) participate in!
Everything mentioned thus far is spot on. Prior to this happening to us in 2022, I was always someone who stressed about saying the “perfect” thing or sending the perfect condolence package to someone dealing with loss — but I was incredibly touched by the amount of friends and family who sent something when we lost our son. It didn’t matter what— food, plants, tea, a good book, a kind note— it was simply the acknowledgment that made a very isolating and lonely experience a little less so.
I also strongly encourage continuing to ask your sister how she is doing postpartum and love another contributor’s suggestion of ensuring she is included in conversations surrounding motherhood, particularly if this was her first. This was perhaps one of the most painful/ isolating parts of this experience for me- you don’t have a living child to show for it, but your body has been through the same trauma as every other new mom out there yet you are often a forgotten member of “the club”. It’s pretty lonely.
Something which has not been mentioned yet but I think it important to mention: I had quite a few well-meaning friends who would compare their first trimester miscarriages/ D&c’s to our situation. While I objectively could understand that they were simply trying to empathize, this felt reductive and cruel. To anyone reading- Please don’t do this.
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2 years, 2 months agoCaroline
Absolutely agree with you that people should not compare first trimester miscarriages to stillbirths. I’ve had one of each and they are not even close to being the same. It’s not about trying to out-grief each other or be competitive about who has it worse, but they’re just nore comparable. I hated the book “The Baby Loss Guide” for this exact reason– it claimed to be a resource for all types of pregnancy and infant loss, but almost the entire book was about miscarriage, including the first-person guest essays, and it did nothing to address some of the worst parts of having a stillbirth (like recovering from labor and dealing with things like your milk coming in, all without a baby).
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2 years, 2 months agoibsen
A therapist who specializes in working with widows once told me something that has stuck with me and that I personally found helpful, both when dealing with others who were grieving and also when I was grieving myself: Grief demands acknowledgement, not fixing.
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2 years, 2 months agoKS
This is a terrible and impossible situation and there have been so many thoughtful and helpful responses. I’d just like to share one resource for your sister’s partner as well: a good friend who lost his daughter at 39 weeks started the Sad Dad’s Club and it has been a balm for him as he manages the loss alongside his wife but with a unique POV that the non gestating parent can also have. 🩷
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2 years, 2 months agoNJMama2023
I had a missed miscarriage at 12 weeks and it was horrible. Keep checking in – weeks and months afterwards. No one prepares you for how long the grieving can last. Be aware of holidays that may make your sister think of her lost child. I was surprised that seeing other friends’ kids in Halloween costumes on social media and getting family Christmas cards upset me. Mark your calendar for her original due date and loss date – and reach out to her each year in remembrance – it will mean so much. For right now, meals and checking in with a simple text will mean the most. I also encourage you, your sister and family to follow pregnancy loss accounts on Instagram. They post very helpful things like what NOT to say and how to help instead.
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2 years, 2 months agoemjane
I am sorry you are in such dark days. Loss is deeply tragic and utterly unfair.
In September, I lost my daughter at 36 weeks, without any warning signs that things had taken a turn. I think everyone’s grief and loss is different, but here are things that I found helpful that others could do for me.
– not being afraid to check in, acknowledge the situation, and use my daughter Cora’s name. Text messages to start, in particular were helpful because I could choose whether or not to engage right away.
– drop-offs of snacks, tea, and other easy to grab ways to get comfort sustenance. Eventually getting full meals were also helpful, but early on, even eating something someone else made felt like too much effort. A handful of nuts, a scone from my favorite cafe, favorite treats from childhood (for me, pringles) got me through those first days. Door dash gift cards also allow me to continue to rely on the kindness of others when days are particularly hard even months later.
-remember she is still dealing with the body complications of postpartum. Extra ibuprofen, Tylenol, adult diapers, witch hazel foam, Ace bandages for binding and cabbage leaves for relief in trying to stop milk flow, etc.
-if they have other children or animals offer care
– don’t be shy to share you are also grieving, yet also try to do your deepest grieving not with her
-MOST IMPORTANT (for me, anyways) was no one saying “everything happens for a reason” or “it’s all God’s plan” People very close to me ran interference to make sure no one said those to me.0 comments -
2 years, 2 months ago
CynI applaud those who have written so far for their very wise and helpful comments and suggestions. In 1953 my mother lost a child who was a twin and had Down’s syndrome, at 4 months of age. There were 6 children in the family age 7 and younger, and the baby never lived at home. Our family never talked about this sister or acknowledged her. I feel pained about this, on my mother’s behalf. By contrast, I have a sister and a niece who experienced death of a 39-week child in utero, and a 4-day-old, respectively. The statements others have made about acknowledgement are spot-on. My sister had 3 toddlers and as hard as that was, it forced her to move forward. It was my niece’s first child and I know the devastating grief must have been paralyzing.
One thing no one has mentioned: the dreaded questions “Do you have any children” OR “How many children do you have?” My youngest child died at age 24, 9-1/2 years ago. I decided long ago that I cannot negate his existence by saying I have 2 children. I always answer that I have 3 children. If I feel like it, or if it’s pertinent, I can add that my youngest has died, but I have no obligation to tell anyone this. Sometimes I have the macabre thought that if I’m asked where they live I can tell where each of my 2 older children reside, and give my youngest’s address as St. Paul, Minnesota, without mentioning that his residence there is a cemetery.
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2 years, 2 months agonixiebear
I want to echo the thoughts, ideas, and sympathy from every other poster here. I also want to add hugs and light for those who “chose” to end a wanted pregnancy due to medical reasons (the term is “TFMR” and I’m so sorry for anyone who is familiar with it). Our loss feels heavy in a unique way, just as all of our losses are unique and painful. There is a similar personal heaviness and difficulty in the wider community’s understanding, and I want you all to know that you are seen as well.
I am so so sorry for you and your family’s loss, and please know we are sending our support to you from all over the world.0 comments -
2 years, 2 months agomdfa
Oh, I am so so sorry. I lost my first pregnancy at 18 weeks, and I can’t even imagine the pain of a later loss/stillbirth.
I agree with so much of what’s been said already, and I don’t know your sister’s situation, but I have some advice to tuck away for potential future use if she becomes pregnant again. My first loss was followed by two more early loses, and when I finally got pregnant with my son, every single day terrifying. I was just waiting for something to go wrong. Once I got past the first trimester, I feel like all my friends/family breathed a sigh of relief. But I was still in a constant state of fear until the baby was in my arms. Please don’t forget that the entire pregnancy will likely be difficult and triggering and a constant mix of fear, excitement, love, and grief.
Same goes for once the baby is born. This might be because it was my first and I didn’t have the experience of having a child before, but I certainly experienced a lot of re grief—-moments of holding my baby and thinking about how much I love him while sobbing in grief over how much I would have loved the baby boy I lost. It can be disorienting and confusing and as much as I felt the love and support of my loved ones after my losses, these feelings in pregnancy and postpartum felt incredibly isolating. I wish that my friends and family would have been aware of these challenges, especially because they can be difficult to bring up or talk about when you feel like you should just be grateful. Please don’t act like this new baby replaces the one who was lost or makes it better.
I’m sending so much love to you and your family during this time.
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2 years, 2 months agojessica
I relate to your comment so much. I lost a child late in pregnancy. When I first told a friend I was pregnant again after this, she asked me how I felt, and without thinking, I said guilty. She couldn’t fathom this reaction at all, but at the time it’s truly what I felt, like I felt like I was betraying my lost child by allowing space to live another one. I remember the early postpartum period, filled with both joy for my new living baby and grief for the one I had lost. At night alone with just the two of us, I would sob and sob, even though the joy of having her filled me so much. Not many people understand that feeling of simultaneous joy and grief that breaded parents experience. It’s a dichotomy you carry forever. And it is so isolating.
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2 years, 2 months agocjyar
We lost 5 pregnancies before our first was born. Here are some things to think about:
– All of these pregnancy loss stories have happy endings. That’s overwhelming for people who don’t have a happy ending to their pregnancy loss story yet, or at all.
– There are several good communities on Reddit that are supportive. Talking with other people who have been there is the very best thing you can do for yourself. If you find people IRL who’ve been there, that’s even better.
– Don’t show up at their house and expect to make them smile or laugh. Tell them it’s okay to feel bad. This is a grief just as intense as losing a loved parent or sibling — but the grief process is different and will feel different. And it will likely last for years.
– Don’t show up and expect them to tell you how to make them feel better. “How can I help?” can be an overwhelming question for somebody who’s already emotionally and mentally overwhelmed. Be present, but don’t be a burden. If the kitchen is a mess, don’t ask; just clean the dishes. And use words like, “Let me know if there’s something else I can do.” That gives them space to sit on the couch and stare at the wall if that’s what they need. Or space to ask you to join them in a fun activity, if that’s what they need.
– Every grieving process is different. Let them grieve the way they need to. Maybe they need to hide evidence of the pregnancy, or maybe they need to keep their child’s cremains right on the breakfast table. It’s tougher when Mom and Dad have different grieving processes.
– The essence of parenting is to love, support, and make decisions for somebody who can’t do those things for themselves. The people who lose a late term pregnancy — or choose to terminate a non-viable pregnancy — are parents, not almost-got-to-be-parents. They don’t have a beautiful baby to show for it, and they may not want to spend time with other people’s beautiful babies.0 comments -
2 years, 2 months agockaczmarsky
My daughter was stillborn at 36 weeks, I appreciated any acknowledgment that I had just had a Csection AND given birth to child even if that child was not living. I felt like family/friends treat you like you just had abdominal surgery and since post-partum care focuses primarily on the infant the clinical support is non-existent.I think supporting them by helping them find resources for physical recovery and emotional support that is trauma informed would be so helpful. Whether it’s introducing them to online resources or letting them know about others you have heard this happening to. There aren’t exercise classes for postpartum women whose babies died, but maybe there is gentle yoga classes that you can attend with them When they are ready. Offer to speak to the teacher if they would like to tell them what they have been through. Chances are that no matter what they learn about their loss, they will blame themselves or have feelings of guilt. knowing that there are others out there who have been through similar experiences and professionals who they can talk to that specialize in pregnancy trauma and loss…every parent I have met after loss needed some kind of therapy for at least a period of time to get them through the first year after loss.
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2 years, 2 months agoSarah
After my first baby was stillborn, I didn’t think that I’d survive. It was his due date a few weeks ago; he would have been 3. I now have a 2-year old and a 7-month old, and my life is fuller than I ever would have imagined or believed, but there will always be a place in our family for him.
When we were deepest in grief, what has been mentioned here (food, therapy, reading, puzzles, baking TV shows) were all so helpful. As is saying their baby’s name, and remembering the important dates in years to come.
Something else that was so meaningful was friends who would just be there with us. Sitting with us in our deep and messy grief. Crying with us.
Sending strength and love to your sister and her husband, and your family.
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2 years, 2 months agojessica
I lost a baby at 27 weeks. I feel like a lot of people didn’t know how to address it around me, and so chose to never bring it up, which is fine. However, when I was pregnant again, people would make comments through out my pregnancy as though it were my first time. I had already gone thru labour and postpartum when I lost my baby. Yet people (who knew what I had experienced)would make comments as if it were my first pregnancy. That was really hurtful, it felt like the erasure of my beloved first born. I would remind anyone supporting someone in this situation to try hard to remember that list child was very much real and loved by the mother even if no one else had a chance to develop a relationship with them. Choose your words respectfully around that frame work.
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2 years, 2 months agoJK
What surprised me most after we lost our baby was that certain friends did not call or keep lines of communication open in some other way. It hurt a lot but ultimately resulted in closer friendships with the people who did call or offered support in person. My advice for supporting a friend who’s gone through such a loss is:
1) Feed them. You can’t think ahead much less plan meals and shop for food when you’re experiencing so much pain. A friend dropped off a cooler full of home-made frozen meals and desserts, and that was a godsend. Another sent a box of my favorite bagels, with lox and cream cheese. It was a much needed treat.
2) Call or make other opportunities to listen. When your friend does want to talk, be ready to listen. They probably don’t want or expect advice, just a listening ear.
3) Don’t make assumptions. A close friend avoided telling me she was pregnant until very late, assuming that I would not share in her joy. That hurt a lot. I think a lot of people also assume that once you become pregnant again or have another child, you somehow forget or move past your loss. That is definitely not the case. My child from my next pregnancy is now a toddler, but I am still quick to tears when pregnancy loss comes up in conversation.
4) Be there for the long haul. There are weeks and months that my experience doesn’t affect my daily life, but then suddenly it does. A true friend is someone who doesn’t judge you for collapsing into an emotional puddle a year down the road from your loss.
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2 years, 1 month agoHartfordRachel
I am so sorry for your family’s loss. When my cousin experienced this, I was also pregnant. My cousin was unable to see me or my son for over a year. While the specifics of that situation do not apply to your situation, one thing I did that I know helped was just continued to reach out to her, with no expectation of a response. Every month or so I just sent her a text saying I was thinking of her, and remembering her baby, and would be here for her whenever she was ready or whenever she needed me. I imagine your sister will go through times of reaching out and will go through times of withdrawing. I think that continuing to reach out to her during the withdrawal times, as long as you expect nothing from her, is really important. I also put the date of the loss in my calendar with a reminder every year. Now I always text my cousins to tell them I am thinking of them and remembering their baby. It is a small thing, but I know it means a lot to them. Sending love to your family.
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