Kayleigh Summers

7 min Read Kayleigh Summers

Kayleigh Summers

When Everything Falls Apart

My birth story and how I learned to move forward

Kayleigh Summers

7 min Read

Before you read on: This essay describes someone’s traumatic birth experience, and may be difficult for some people to read. If this isn’t for you today, please skip it. If you’d like to share your unexpected story in the private forum, please log in to view and comment.


It was a hot Saturday in August, the kind of day where as soon as you step outside, it’s difficult to take in a full breath. I sat on the couch, staring aimlessly at the television as my husband and family milled about the house. A baby was crying somewhere in the distance. My mom walked into my line of vision with the crying baby asking if I wanted to feed him. I shuddered, trying to clear the brain fog. Right, the crying baby was mine. I had a baby. We were finally home with our baby. I was a mom. 

No, I didn’t want to feed him. No, I didn’t want to hold him. I wanted to continue to stare into space and wonder how everything had gone so wrong. I wanted to sink into the couch and disappear. But that was too scary to explain, especially to a room full of people who were just happy to see me alive. So I took the bottle and fed my baby. 

I had everything I’d spent the past nine months hoping for, but I had never felt so empty, so wrong. Maybe if I could just pinpoint the moment everything fell apart, the moment my world turned upside down, I could finally make it make sense. I could finally feel better.


It was a Wednesday, July 17. I woke up after my second night in the hospital and was dilated to 8 centimeters. By midday, I was finally at 10. As my OB-GYN left the room to prepare for the birth, I turned to my nurse and told her I wasn’t feeling well. This was the moment of impact. This was the exact point in time when my life split into a before and after. Quickly after stating I didn’t feel well, I told my nurse something was very wrong and then I screamed, “Something is wrong with my heart!” seconds before I went into cardiac arrest and a code blue was called. 

My room filled with medical professionals, and my husband was pushed to the back corner as they began CPR and rushed me to the OR. My son was delivered as CPR continued. He was quickly resuscitated and taken to the NICU. I was not alive for the birth of my son. I was experiencing an amniotic fluid embolism, a rare and often fatal obstetric complication. Over the next 12 hours, a team of OB-GYNs, trauma surgeons, cardiologists, nurses, techs, and blood bankers worked tirelessly to save my life.

After another cardiac arrest, extracorporeal membrane oxygenation (ECMO), an emergency hysterectomy, and more than 140 units of blood product, I was stabilized enough to be transferred to a medical center that was able to maintain the ECMO circuit and continue my care. I would require three additional abdominal surgeries and an Impella heart pump to survive. I met my son five days postpartum. I have no memory of it.

I spent 14 days in the ICU before I was discharged home. I thought we would sail off into the sunset as a family of three. I survived something I shouldn’t have. Doctors and nurses were visiting my room each day in awe that I was alive, let alone cognitively intact. They reminded me of the miracle I was and how far I’d come in such a short amount of time. I felt like a superhero. 

Then we went home, and the realization of all that had happened and the permanency of its impact hit me. I was still recovering physically, with open incisions as well as several blood clots, but now I had a baby to bond with and take care of. This was so far from what I had imagined, and it would be the only experience I would ever get to have. I’d already missed so much, and I continued to miss it even as it was happening right in front of me. I couldn’t stop reliving the ICU. I couldn’t stop ruminating on what I could have changed, what I could have done differently to alter the outcome. I was angry and sad, and then consumed by guilt for feeling anything other than gratitude. I was one of the lucky ones. I was one of the ones who got to stay, who was given the chance to be a mom. Why couldn’t I just be happy? 

Although I am a therapist who regularly helps clients navigate the complexities of life after trauma, in these moments, I felt lost. I soon realized with the help of my own therapist that I was trying to drown myself in gratitude and positivity. I needed to make space for all of my emotions, exactly as they were. I needed to lean into the duality and complexity of these feelings after birth trauma. I could be grateful that I survived and also devastated that this happened to us; these feelings are not mutually exclusive. I inherently knew this as a therapist, but I couldn’t access it as a birth trauma survivor.

This practice of accepting my feelings without judgment and leaning into self-compassion was the first and most important step in my healing journey. As we always say in the therapy room, you can’t heal what you don’t feel. 

I also realized I had to forgive my past self. I had to forgive the version of myself who sat on that couch staring into space, who resented feeding her own baby. I had to forgive the version of myself who was just trying to survive in a world she no longer recognized, a world she could no longer tolerate. For so long, I blamed her for missing out on time with her son. I blamed her for making everything harder than it needed to be. Until one day, I realized she was just doing the best she could with what she had at the time and, more than that, she’s the reason I’m where I am today. She’s the one who suffered through postpartum so that I could be here, with a heart that’s barely able to contain the gratitude and joy as I watch my 4-year-old run around the bases at his T-ball game. 

The tears prick at the back of my eyes, and I know it’s not the freezing winds of a T-ball season that starts much too early but the reminder of how far we’ve come and how far we still get to go. It’s a reminder that I get to be a mom, that I get to watch Callahan grow up. Birth trauma may have taken our initial days together, and those I will always grieve, but now we get the years.


Birth trauma is a subjective experience. It is an autonomic response of the nervous system, similar to an alarm being tripped in the brain, often set off by a perceived threat to safety. It is not a choice. Birth traumas vary greatly in their cause and presentation. My story is only one example. 

Your birth experience did not need to have been life-threatening or complicated for it to have been traumatic. Your birth story, whatever it may be, is valid. Your experience deserves to be held and grieved. 

It was not your fault. It does get better. This is not your forever. 


Do you have an unexpected story? Join us in a private room in the ParentData Village to share it and connect with other readers.

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lucyc
9 days ago

My first birth was an emergency c-section when they couldn’t find the heartbeat. I was put under and don’t have any memories of the birth. I was devastated and have felt like there’s a hole in my birth story that can never be filled. It’s really hard for people who haven’t gone through this to understand the emotions surrounding this type of event, especially when the baby is healthy and thriving after birth.

We got pregnant again when my son was 1.5 years old. I miscarried at 12 weeks. It was considered ‘normal’ and probably due to ‘natural’ causes and that I should be ‘glad it terminated because of DNA complications’ but I was so sad. I kept having these feelings and thoughts that I knew didn’t make logical sense. I didn’t want to have a D&C because I needed to keep the baby warm. I’m still grieving the loss and have a sense that the baby still needs to be cared for. I’ve done therapy for this and am more at peace, but also embracing the feelings that will always be there.
These two events have changed who I am, in both good and difficult ways. Sending so much love to everyone in this thread.

Najwa
Najwa
11 days ago

I had a massive postpartum hemorrhage exactly 8 years ago and I cannot thank you enough for sharing your story. I feel exactly how you feel. Sending you the biggest virtual hug.

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I’m calling on you today to share your story. I know that many of you have experienced complications during pregnancy, birth, or postpartum. It’s not something we want to talk about, but it’s important that we do. Not just for awareness, but to help people going through it feel a little less alone.

That’s why I’m asking you to post a story, photo, or reel this week with #MyUnexpectedStory and tag me. I’ll re-share as many as I can to amplify. Let’s fill our feeds with these important stories and lift each other up. Our voices can create change. And your story matters. 💙

#theunexpected #emilyoster #pregnancycomplications #pregnancystory

I’m calling on you today to share your story. I know that many of you have experienced complications during pregnancy, birth, or postpartum. It’s not something we want to talk about, but it’s important that we do. Not just for awareness, but to help people going through it feel a little less alone.

That’s why I’m asking you to post a story, photo, or reel this week with #MyUnexpectedStory and tag me. I’ll re-share as many as I can to amplify. Let’s fill our feeds with these important stories and lift each other up. Our voices can create change. And your story matters. 💙

#theunexpected #emilyoster #pregnancycomplications #pregnancystory
...

OUT NOW: My new book “The Unexpected: Navigating Pregnancy During and After Complications” is available on April 30th. All of my other books came out of my own experiences. I wrote them to answer questions I had, as a pregnant woman and then as a new parent. “The Unexpected” is a book not to answer my own questions but to answer yours. Specifically, to answer the thousands of questions I’ve gotten over the past decade from people whose pregnancies were more complicated than they had expected. This is for you. 💛 Order now at my link in bio!

OUT NOW: My new book “The Unexpected: Navigating Pregnancy During and After Complications” is available on April 30th. All of my other books came out of my own experiences. I wrote them to answer questions I had, as a pregnant woman and then as a new parent. “The Unexpected” is a book not to answer my own questions but to answer yours. Specifically, to answer the thousands of questions I’ve gotten over the past decade from people whose pregnancies were more complicated than they had expected. This is for you. 💛 Order now at my link in bio! ...

OUT NOW: My new book “The Unexpected: Navigating Pregnancy During and After Complications” is available on April 30th. All of my other books came out of my own experiences. I wrote them to answer questions I had, as a pregnant woman and then as a new parent. “The Unexpected” is a book not to answer my own questions but to answer yours. Specifically, to answer the thousands of questions I’ve gotten over the past decade from people whose pregnancies were more complicated than they had expected. This is for you. 💛 Order now at my link in bio!

OUT NOW: My new book “The Unexpected: Navigating Pregnancy During and After Complications” is available on April 30th. All of my other books came out of my own experiences. I wrote them to answer questions I had, as a pregnant woman and then as a new parent. “The Unexpected” is a book not to answer my own questions but to answer yours. Specifically, to answer the thousands of questions I’ve gotten over the past decade from people whose pregnancies were more complicated than they had expected. This is for you. 💛 Order now at my link in bio! ...

OUT NOW: My new book “The Unexpected: Navigating Pregnancy During and After Complications” is available on April 30th. All of my other books came out of my own experiences. I wrote them to answer questions I had, as a pregnant woman and then as a new parent. “The Unexpected” is a book not to answer my own questions but to answer yours. Specifically, to answer the thousands of questions I’ve gotten over the past decade from people whose pregnancies were more complicated than they had expected. This is for you. 💛 Order now at my link in bio!

OUT NOW: My new book “The Unexpected: Navigating Pregnancy During and After Complications” is available on April 30th. All of my other books came out of my own experiences. I wrote them to answer questions I had, as a pregnant woman and then as a new parent. “The Unexpected” is a book not to answer my own questions but to answer yours. Specifically, to answer the thousands of questions I’ve gotten over the past decade from people whose pregnancies were more complicated than they had expected. This is for you. 💛 Order now at my link in bio! ...

Is side sleeping important during pregnancy? Comment “Link” for a DM to an article on whether sleep position affects pregnancy outcomes.

Being pregnant makes you tired, and as time goes by, it gets increasingly hard to get comfortable. You were probably instructed to sleep on your side and not your back, but it turns out that advice is not based on very good data.

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Sources:
📖 #ExpectingBetter pp. 160-163
📈 Robert M. Silver et al., “Prospective Evaluation of Maternal Sleep Position Through 30 Weeks of Gestation and Adverse Pregnancy Outcomes,” Obstetrics and Gynecology 134, no. 4 (2019): 667–76. 

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Is side sleeping important during pregnancy? Comment “Link” for a DM to an article on whether sleep position affects pregnancy outcomes.

Being pregnant makes you tired, and as time goes by, it gets increasingly hard to get comfortable. You were probably instructed to sleep on your side and not your back, but it turns out that advice is not based on very good data.

We now have much better data on this, and the bulk of the evidence seems to reject the link between sleep position and stillbirth or other negative outcomes. So go ahead and get some sleep however you are most comfortable. 💤

Sources:
📖 #ExpectingBetter pp. 160-163
📈 Robert M. Silver et al., “Prospective Evaluation of Maternal Sleep Position Through 30 Weeks of Gestation and Adverse Pregnancy Outcomes,” Obstetrics and Gynecology 134, no. 4 (2019): 667–76.

#emilyoster #pregnancy #pregnancytips #sleepingposition #pregnantlife
...

My new book, “The Unexpected: Navigating Pregnancy During and After Complications” is available for preorder at the link in my bio!

I co-wrote #TheUnexpected with my friend and maternal fetal medicine specialist, Dr. Nathan Fox. The unfortunate reality is that about half of pregnancies include complications such as preeclampsia, miscarriage, preterm birth, and postpartum depression. Because these are things not talked about enough, it can not only be an isolating experience, but it can also make treatment harder to access.

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My new book, “The Unexpected: Navigating Pregnancy During and After Complications” is available for preorder at the link in my bio!

I co-wrote #TheUnexpected with my friend and maternal fetal medicine specialist, Dr. Nathan Fox. The unfortunate reality is that about half of pregnancies include complications such as preeclampsia, miscarriage, preterm birth, and postpartum depression. Because these are things not talked about enough, it can not only be an isolating experience, but it can also make treatment harder to access.

The book lays out the data on recurrence and delves into treatment options shown to lower risk for these conditions in subsequent pregnancies. It also guides you through how to have productive conversations and make shared decisions with your doctor. I hope none of you need this book, but if you do, it’ll be here for you 💛

#pregnancy #pregnancycomplications #pregnancyjourney #preeclampsiaawareness #postpartumjourney #emilyoster
...

We are better writers than influencers, I promise. Thanks to our kids for filming our unboxing videos. People make this look way too easy. 

Only two weeks until our book “The Unexpected” is here! Preorder at the link in my bio. 💙

We are better writers than influencers, I promise. Thanks to our kids for filming our unboxing videos. People make this look way too easy.

Only two weeks until our book “The Unexpected” is here! Preorder at the link in my bio. 💙
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This is why good data is so important! When we can trust the data, we can trust our choices. And this study shows there is no blame to be placed on pregnant women here. So if you have a migraine or fever, please take your Tylenol.

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Exciting news! We have new, high-quality data that says it’s safe to take Tylenol during pregnancy and there is no link between Tylenol exposure and neurodevelopmental issues in kids. Comment “Link” for a DM to an article exploring this groundbreaking study.

While doctors have long said Tylenol was safe, confusing studies, panic headlines, and even a lawsuit have continually stoked fears in parents. As a result, many pregnant women have chosen not to take it, even if it would help them.

This is why good data is so important! When we can trust the data, we can trust our choices. And this study shows there is no blame to be placed on pregnant women here. So if you have a migraine or fever, please take your Tylenol.

#tylenol #pregnancy #pregnancyhealth #pregnancytips #parentdata #emilyoster
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#cribsheet #emilyoster #parentdata #languagedevelopment #firstwords

How many words should kids say — and when? Comment “Link” for a DM to an article about language development!

For this graph, researchers used a standardized measure of vocabulary size. Parents were given a survey and checked off all the words and sentences they have heard their child say.

They found that the average child—the 50th percentile line—at 24 months has about 300 words. A child at the 10th percentile—near the bottom of the distribution—has only about 50 words. On the other end, a child at the 90th percentile has close to 600 words. One main takeaway from these graphs is the explosion of language after fourteen or sixteen months.

What’s valuable about this data is it can give us something beyond a general guideline about when to consider early intervention, and also provide reassurance that there is a significant range in this distribution at all young ages.

#cribsheet #emilyoster #parentdata #languagedevelopment #firstwords
...

I saw this and literally laughed out loud 😂 Thank you @adamgrant for sharing this gem! Someone let me know who originally created this masterpiece so I can give them the proper credit.

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#swimlessons #watersafety #kidsswimminglessons #poolsafety #emilyoster #parentdata

What age is best to start swim lessons? Comment “Link” for a DM to an article about water safety for children 💦

Summer is quickly approaching! You might be wondering if it’s the right time to have your kid start swim lessons. The AAP recommends starting between 1 and 4 years old. This is largely based on a randomized trial where young children were put into 8 or 12 weeks of swim lessons. They found that swimming ability and water safety reactions improve in both groups, and more so in the 12 weeks group.

Below this age range though, they are too young to actually learn how to swim. It’s fine to bring your baby into the pool (if you’re holding them) and they might like the water. But starting formal safety-oriented swim lessons before this age isn’t likely to be very helpful.

Most importantly, no matter how old your kid is or how good of a swimmer they are, adult supervision is always necessary!

#swimlessons #watersafety #kidsswimminglessons #poolsafety #emilyoster #parentdata
...

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Like with most things, moderation is key! Avoid very salty chips or olives or saltines with your infant. But if you’re doing baby-led weaning, it’s okay for them to share your lightly salted meals. Your baby does not need their own, unsalted, chicken if you’re making yourself a roast. Just skip the super salty stuff.

 #emilyoster #parentdata #childnutrition #babynutrition #foodforkids

Can babies have salt? 🧂 While babies don’t need extra salt beyond what’s in breast milk or formula, the risks of salt toxicity from normal foods are minimal. There are concerns about higher blood pressure in the long term due to a higher salt diet in the first year, but the data on these is not super compelling and the differences are small.

Like with most things, moderation is key! Avoid very salty chips or olives or saltines with your infant. But if you’re doing baby-led weaning, it’s okay for them to share your lightly salted meals. Your baby does not need their own, unsalted, chicken if you’re making yourself a roast. Just skip the super salty stuff.

#emilyoster #parentdata #childnutrition #babynutrition #foodforkids
...

Is sleep training bad? Comment “Link” for a DM to an article breaking down the data on sleep training 😴

Among parenting topics, sleep training is one of the most divisive. Ultimately, it’s important to know that studies looking at the short- and long-term effects of sleep training show no evidence of harm. The data actually shows it can improve infant sleep and lower parental depression.

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What’s your experience with sleep training? Did you feel judged for your decision to do (or not do) it?

#sleeptraining #newparents #babysleep #emilyoster #parentdata

Is sleep training bad? Comment “Link” for a DM to an article breaking down the data on sleep training 😴

Among parenting topics, sleep training is one of the most divisive. Ultimately, it’s important to know that studies looking at the short- and long-term effects of sleep training show no evidence of harm. The data actually shows it can improve infant sleep and lower parental depression.

Even so, while sleep training can be a great option, it will not be for everyone. Just as people can feel judged for sleep training, they can feel judged for not doing it. Engaging in any parenting behavior because it’s what’s expected of you is not a good idea. You have to do what works best for your family! If that’s sleep training, make a plan and implement it. If not, that’s okay too.

What’s your experience with sleep training? Did you feel judged for your decision to do (or not do) it?

#sleeptraining #newparents #babysleep #emilyoster #parentdata
...